April 12, 2011 Day +3298 from transplant Day +2996 off therapy
We have been super busy! That is a very good thing, but it leaves little to no time for updating.
I last updated in February. I don’t even know if I can remember that far back…..Let me try to squeeze out a memory. In February Taylor and Matthew, his best bud, had a birthday party for Michaeil Jordan. Yep, thats what I said, cake, pizza, sleepover, the whole 9 yards! The kid loves some basketball right now. Speaking of bball, he played upwards and loved it! He came so far from try outs to the last game. Sad that we found this league so late and he only has one more year to play it.
We went to the Heart to Hart gala for aTeam. You may remeber that Taylor was an artist last yr in this event and painted a pic with Amy Pleasant a local artist. The pieces were then auctioned off. This yr he was invited back as a special guest. It was a great event as all ateam events are. We met Coach Chizik again and his wife, Jonna. They are so down to earth and sweet. They make you feel like you are life long friends. Thanks to the Chiziks, the Throwers and ateam for all you do!!!
Taylor had his 11 year old check up and got his next round of shots for middle school. wow, those words are odd…..middle school……
Logan joined the Bases Loaded Bandits baseball team. That is enoug to keep us very busy, but we are all loving it. Great group of boys and familys. Good times! Practice is about 45 monutes away, so we stay on the road, but its fun. We started our season in Alabaster, a local tourney. The boys came in 2nd place. I thought that was pretty darn good for a group that hasn’t been together that long. Our second tourney was also in Alabaster and again the boys came in 2nd. We had forst in the bag and kind of fell apart, but its all a learning exprience! They held their heads high, but came off that field mad and wanting 1st, so they know what they are working for! The next week was a one day tournament in PellCity, Al. It was a long day! The boys started out rough, losing the first two pool play games. The third one they pirked up and won. Logan is very competitive and he was crying when his team mates were running and not resting between games. I just laugh at him! We got into our bracket play and it was a new group it looked like. We kicked butt and took names and left there with the 1st place trophy! It was tied for a while and Logan’s RBI was the winning run! Go Lo Lo! He is really doing well!
We left Pell CIty very late that Saturday night and got very little sleep before leaving Sunday for Disney World!
We had a great time. We walked so very much and were so very tired, but it was fun. We did a lot of stuff we had never done or hadn’t done in a while. The kids are at a good age where the magic of Disney is still there, but they are big enough to do stuff too.
We came on Saturday and stopped in Auburn to watch the LSU/AU game. Great game!!! Then we had dinner with some friends. A great end to our spring break.
BAck to school….9 more weeks, we can do it! NO homework for Taylor due to ARMT state testing, so that makes it much easier. Logan has HW, but its easy and short.
The following weekend found us in Florence, AL. for the southeastern elite tournament. We played well, but it was a huge tournament and we got put out early in bracket play. It was a dissapointment, but they must strive to do better. Taylor loved this weekend because our best friends kids were playing there too, so he had buds around.
April 2 was Taylor’s sterm cell transplant anniversary. 9 years!!! I am so blessed to so those words! I remember thinking the 100 days of lock down would never end and here we are 9 years out. Our God is so good!
I had Taylor’s last elementary IEP. It went very well. I was hoping to meet with a middle school rep, but she didn’t make it. However, I am very pleaseed with IEP and the accomidations that are in place for him. It will be a huge transition, but he will make it. I remember being so sure he could not make it through K5 and he did. He not only got through it, but he is 1 semester away form having honor roll his entire elementary career. Take that cancer!!!!
Easter was beautiful, the weather was perfect. The kids had a great day and we all enjoyed our family time. Easter Sunday was the day we found out for sure 9 years ago that Taylor was going home from stem cell and that I was pregnant with Logan:)
We also went Zip lining with camp SAM. It is right here in our back yard, Red mtn trails (off lakeshore for you locals) it was fabulous! Taylor had a blast as did all the families. It is certaily a place we will go back to. Thanks to Camp for a great day!
Logan and Taylor both ended up with the crud after Easter. Neither tested positive for anything, so it was just viral crud. They missed a day of school, but got over it pretty quick.
That about catches you all back up. Really all we do is baseball:) This weekend we will be in Montgomery. We have at least 3 more tourneys and the world series and that just what I know off the top of my head, I am sure there are more. We got the notice tosign up for football today. Taylor did flag last year, but it destermied to do thereal deal this year. I have put him off for year. We go in 2 weeks for his yrly ONC visit and if Dr. Berkow says it is ok then I guess we will do it. I will be a nervous wreck!!!!! That will be the longest 10 weeks of my life!
I guess that about wraps it up. Hopefully, I will update soon. I am sure you can pretty much figure out our days from here through summer……umtil then……..
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